2024 American Neurological Association, Orlando, FL Dr. Larisa Syrow (neurologist) and Coco Newton

2022 Healing ALS Conference Salt Lake City, UT

2019 Healing ALS Conference, Salt Lake City, UT

ALS RESOURCES

BOOKS                                                                            
The Deanna Protocol- Vincent M. Tedone, MD
Eric is Winning- Eric Edney The Wahls Protocol- Terry Wahls, MD
The Wahls Protocol Cooking for Life- Terry Wahls, MD
The Ketogenic Cookbook- Jimmy Moore
Radical Remission: Surviving Cancer Against All Odds by Kelly Turner (apply same principles to ALS)

WEBSITES

HealingALS.org EverythingALS.org IamALS.org AnswerALS.org The Mark Manchester Project  Steve Shackel Kim Cherry, ALS Winners-The Road to Recovery Dr. Richard Bedlack (Duke University ALS Clinic) ALS Therapy Development Institute

MEDICAL - Find a doctor (MD, DO, Naturopath, Chiropractor) and/or nutritionist that is trained and experienced in Functional Medicine and neurodegenerative diseases. I

LABS A few examples: Metabolic Panel, CBC, B12, B6, Folate, Zinc, Copper, Ceruloplasmin, RBC Magnesium, Iron Panel, Ferritin, Vit D, Vit A, Iodine, Lipid Panel, hsCRP, Sed Rate, Homocysteine, Lipid Panel, Thyroid Panel, Carnitine Panel, and others. Specialized tests such as comprehensive stool analysis, heavy metals, environmental pollutants, viral panel, Lyme testing, food allergies, organic acids, etc. Further details with personalized nutrition approach.

ENVIRONMENTAL                                  Toxins: Get rid of toxic chemicals in your home - cleaning and laundry products, personal-care products (lotion, shampoo, makeup, deodorant, toothpaste, etc). Purchase hypoallergenic and organic or very pure cleaning products, or make your own products https://wellnessmama.com/6244/natural-cleaning/

You can look up to see what “grade” your various products (household, personal- care, etc) get through Environmental Working Group https://www.ewg.org

Allergies: Determine if you are allergic to your detergents, personal-care products, bedding, carpeting, and other indoor allergens.

Mold Illness: Make sure you are not exposed to mold and begin remediation if you have been exposed. https://www.survivingmold.com

DENTAL

If you have silver fillings (mercury amalgams), see a dentist certified in biological/holistic dentistry only for removal. Assess periodontal disease. Do not chelate or detoxify with amalgams in your mouth. Assess root canals for infections, oral dysbiosis, osteonecrosis.  Oral health has a profound effect on immune system and ALS.

DIET

There is no “one size fits all” diet or nutrition supplementation plan for pALS, because it must be tailored to the individual based on medical, environmental, biochemical, genetic, and other factors. These are generally helpful guidelines:


Identify allergenic foods and avoid them.
Avoid foods that give you indigestion, fatigue, pain, or other negative symptoms. Get rid of added sugar in your diet, and read labels on food packages. Get rid of fast food, processed foods, and junk foods.
Avoid Genetically Modified (GMO) foods.
Avoid dairy foods, and can substitute coconut milk and homemade almond milk and other nut milks. Avoid gluten in wheat, rye, barley and other ingredients that contain gluten such as soy sauce and other prepared foods.
Eat lots of organic vegetables and fruits (red/purple, orange/yellow, green), but more vegetables than fruits. Avoid dried fruit and straight fruit juice.
Learn how to juice veggies and fruit.
Make daily protein smoothies from vegetarian proteins.
Eggs, chicken, beef, lamb, bison, and pork only if organic. Broths are nutritious. Fish only from wild caught Alaskan salmon (not Atlantic or Pacific), not farmed. Small fish (anchovies, herring, sardines) ok.
Healthy Fats are from avocados, nuts, olives, olive oil, coconut, coconut oil, and grass-fed ghee, butter
MCT Oil: Bulletproof Brain Octane
Sea salt, spices, and herbs are fine.
Filtered water
If chewing and swallowing is a problem, use more highly nutritious soups and smoothies.

To supplement daily meals or with a feeding tube: HEAL in a Meal
Functional Formularies Liquid Hope, Keto-Peptide

To make home-made tube feedings, please visit this resourceful website

Ketogenic Diet Plan -can be adapted with Paleo Diet or Modified Atkins Diet Approximately 70% fat, 20% carbohydrate, and 10% protein
May or may not be appropriate for individual pALS

SUPPLEMENTS- basics might include        multi-vitamin-mineral without copper or iron Magnesium                                                      
Vit K2                                                             Vit D3
Coenzyme Q10 (MitoQ)         Vit B12                                                         Acetyl-L-carnitine                                             Alpha lipoic acid
Glutathione and/or N-acetyl cysteine Fish oil depends on the individual
Phospholipids                                                                 Nicotinamide Riboside                                    Bulletproof Brain Octane                            TUDCA LEAPxx

*Other supplements for specific nutrients requirements, GI function, inflammation, environmental toxins, immunity, oxidative stress, excitotoxicity, and other functions per individualized laboratory assessment.

I met Mark and McFinn at the 2019 Healing ALS Conference. They did their own research and consulted with various practitioners to heal ALS.

Mark went from not walking, talking, eating, or breathing on his own to being free of a wheelchair, feeding tube, and ventilator.

McFinn could only move his head and 2 fingers, but was still eating and breathing on his own.